Friday, February 12, 2010

Cross Facial Nerve Graft Surgery...February 26th

It has been awhile since I've blogged about Isaac's recovery and where we go from here. At the end of January, we had three tests done at Children's Hospital in Seattle. We had a consultation there in December with the Craniofacial clinic - specifically with facial reanimation surgeons who specialize in things such as permanent facial paralysis. They ordered these tests which included a BEARS hearing test to determine Isaac's current hearing situation in his left ear, an EMG which shocked the facial nerves to see if a really strong shock would be felt by his brain and another MRI to attempt to get a better look at one of the fractures that they believe would've severed his facial nerves.

Immediately we got results from the audiologist that Isaac's hearing has declined since tests were last run in September and they have determined that his hearing has almost been completely lost in that left ear. The results of the other two tests, we had to wait a week to hear the results of those but as a result of the hearing results were prepared for the worst....thank goodness (usually I'm a glass half-full kinda gal).

We had a followup appointment with them and they determined as a result of those tests that the probability that the nerve was in fact severed by that fracture was nearly certain. The EMG showed that his brain did not react to any of the very strong shocks they imposed on the nerve. And although the MRI proved difficult to read, it showed the fracture of the skull near where the cochlea is (where the hearing, facial nerves and balance nerves run through) was in fact severed. Severed nerves do not repair themselves.

P.S. I know you shouldn't start sentences with "and" but it works for me....

So in the same appointment, we met with a facial reanimation surgeon and a micro-surgeon and they both recommend Isaac have a cross-facial nerve graft. We believe that given the result of tests, this is the best option we have for Isaac to regain full control again of the left side of his face.

What they will do in this surgery is actually take a nerve from his leg - a nerve that gives feeling to the outside of one of his feet - they will take it and make incisions on both sides of his face. They will use that nerve to connect the right side nerves of his face (the good side) to the left side of his face. This would mean that the right side would control the left side.

Some detailed information to exactly what the lack of the facial nerve inhibits....

* Isaac's brow does not furrow.
* Isaac's eye will not blink.
* Isaac's nose does not crinkle.
* Isaac cannot smile on the left side of his face.

As you can see in the image below, the left eye always remains wide open and his lips on the left side can not curve into a smile, which as you will see, results in a droop.

A successful surgery will mean he regains full function on the entire left side of his face but it will mimic his right....so no winking (who cares). He will smile and most importantly blink his eye. Right now because his lid does not fully close we have to continually put false tear drops in it and a lubricant at night. He does not sleep with one eye open as gravity pulls it down but more often than not, it does not fully close.

Of course there are risks associated with the surgery and we will be fully aware of those risks very soon. As I understand via research we have done online and what the surgeons have told us thus far, he could suffer dyskenesis or synkenesis which is where all the fibres fire at once so that indivual control of mouth, eyes, forehead etc. can be difficult but could be altered with physical therapy. Another risk could be that movement of the "good/right" side could be impacted.

However, we are focusing on the positive which is that in this situation, there are potential solutions to his current medical condition.

His cross-facial nerve graft surgery is scheduled for February 26th. Results of the surgery may not be known until as early as 6 months and as late as 2 years. However, we are just so thankful that there is something that can be done. The surgeons were anxious to schedule for as soon as possible as results are best as close to the accident as possible.

We of course, are hoping for an amazing outcome. Below you will see a facial nerve graft image. It shows the track of the nerves and how they will be connected (through lifting of his face and under his nose). This is a very serious surgery and we appreciate prayers and well wishes for the success of this surgery and the swift recovery of our sweet boy.

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