Just a bit of an update! We have moved from the PICU into a regular room. Although it means he has improved, going from the one on one care to another fish in the sea has been a bit of a rough transition. I am that mom that is worrying and analyzing his condition and progress constantly. Although I'm sure most moms would be this way, I've been told by the doctors not to expect too much (which is exactly what I've been doing). Because his brain has been through major trauma, although their is no "brain damage", there is still a lot to be done as far as getting all of his functions back - if they come back.
Isaac is definitely taking steps forward. For example, his head is becoming much stronger and he's constantly trying to sit up. He also seems to be focusing more today and for longer periods - great steps! However he goes through these times when it seems like he's slipping away - not making eye contact, just kind of this blank slate and that has been nothing short of heartbreaking. The doctors reassure us this is normal when such trauma has happened to the brain and we have to set aside all recovery expectations. Easier said than done.
Meanwhile, Lyndon will have to go back to work sometime this week. He has been with his company under 90 days and has no PTO right now. It's really hard for him to think of leaving Isaac for so long every day but maybe it will be good to get his mind on something else for awhile. Who am I kidding? He's going to be miserable!!!
This has taken me forever to write. Every specialist in the world has been to see Isaac today. They are worried because he's not keeping any food (liquid through a tube in his nose) down, we've seen the neuro psych, a speech therapist and are waiting for the rehabilitation specialist. There is some talk that it could be possible they move us to another facility where he could be in an inpatient rehab program. Again, time will tell!
Update about the specialists! Before I published the post, the rehab specialist came. He said Isaac will probably be moving to an inpatient rehabilitation facility at Children's Hospital in Seattle next Monday. He will be back on Wednesday to reassess. He said patients like Isaac often benefits greatly from such care. Although Seattle is far from home and Sydney, we'll have to just figure it out! We will know more on Wednesday...
Thank you for your prayers and thoughts. Our baby needs them!!
7 comments:
just to let you know we`re still thinking of ya`ll all the time. i can only imagine how ruff this is on all of ya`ll. love and prayers still headed ya`lls way.
ronnie and vickie
Oh Rebecca, it makes me so happy to see you and Lyndon holding him. I cant even imagine what you guys are going through, and yet you still take the time to update us all on Isaac. It is truly amazing to see him sitting up, when less than a week ago, things were so unsure. I hope the rest of his recovery is just as fast,
Hugs to yall
Ali
((( Rebecca and Lyndon))) More hugs to you guys. Isaac looks so much better, it will take time I know.
Thinking of you and praying all day and all night!
Nancy
Rebecca,
We have been praying for you guys and thinking of you lots. Here is a verse that has encouraged my heart in tough times, although I still have no idea what you must be going through.
Psalm 118:13-14 "I was pushed hard, so that I was falling, but the Lord helped me. The Lord is my strength and my song; he has become my salvation".
With love and prayers,
Autumn (for Jordan, Alita and Eva as well)
Oh, the PICU is so much nicer than the sixth floor because of the 1:1 attention. It's difficult as a parent to not have nurses coming in the moment those machines start beeping. Still, it does mean he's less at risk which is a wonderful thing. A move up to Children's would be difficult for your family since that would mean a longer drive for your husband, family, and daughter to make to visit, but I've heard the facilities are wonderful and they have more opportunities for rehab than Mary Bridge. I know it is really common for MB patients to be sent up there for rehab.
Our thought and prayers are with all of you. We don't even know Isaac except through your blog, but we went through so much up at MB with our youngest that I feel like I know how you feel and what you're going through. Take care and may God continue to give you strength and patience.
the Lord is answering our prayers, one day at a time. it is so good to see pic of how isaac is doing. his color looks good. he will improve faster having contact with the family. a more normal life than the one on one with the nurses. the body has a way of healing itself, working around injuries that cannot be healed. making new paths for blood vessels and nerves, etc. his stomach had major trauma too, and may just need more time to heal, but until then, prayers continue to be sent for his full recovery.
always in our thoughts
huggsss
tommie
tims mom
Good that he is progressing everyday don't worry he will be perfect keep hope in God!!!
Carol
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